CarolRae.pheochromocytomasupportboard
- Name: Carol DeJong
- Age: 65
- Location: Belle Plaine IA US
| Total Posts | Last Post | Last Seen | Joined |
|---|---|---|---|
| 135 | 12/03/09 20:02:28 | 12/03/09 20:02:28 | 08/04/09 |
| Visitors Now | Visitors Today | Most Visits | Total Visits |
|---|---|---|---|
| 0 | 0 | 13 10/03/09 |
79 |
Music I listen to
Rod Stewart, Michael Jackson, Ray Charles, Guns and Roses, ACDC, James Otto, and a few others.
Interesting facts about me
I am not a pheo or para patient, but my son-in-law has metastatic paragangliomia. He has had two surgeries and it is now in his bones in the rib and pelvic
areas. He is doing chemo (CVD) now, and is going to Switzerland in 2-3 months for a treatment called Y90. My daughter Kim and I heard about this support board
and decided to join to meet people facing some of the same problems we are facing. I am a breast cancer survivor (7 years now). A year ago I retired from
teaching in a small Iowa town. I was a language arts teacher and still volunteer and substitute teach. I am married and have two daughters and five
grandchildren. We lost our son in 2006 to suicide. He was 30. This continues to be heart wrenching, but our family is a close unit and we support one another.
Thank you to all of you out there who pray for us as we pray for you. I only wish I could know you all personally. Keep me posted! Carol
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AbejaTupelo
10/17/09
Thanks for checking in. I'm actually doing great. It's somewhat mysterious and miraculous. I had my first "episode" today in three weeks! I was having them at least once a day before that. Very odd.
The one big difference I've done is that I've slept a lot. I have been not getting up early in the morning, but laying around in bed with my three year old for until around 7:30 or 8, instead of getting up at 6:30 or 7. I think it helps! I got up early with an alarm clock this morning, and whammo--I had an attack this afternoon.
Blessings to you and your family!
Abeja
AbejaTupelo
09/21/09
It seems we joined the board at about the same time. I have trouble navigating or remembering where I've left a post so that I can go see if anyone replied. So, I thought I'd tell you that I replied to you...geez, where was that....I think it was in the bios section under my bio...you asked about natural remedies to help your son-in-law.
I'd be happy to communicate directly if you want. I don't check emails more than once a week or so, but my email is abeja@emeraldearth.org.
Blessings,
Abeja
Vonnie
09/05/09
I was wondering were you are from? I'm from PA. Yvonne
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